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Raynaud's Desease

Cabiness

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I saw your message regarding your sister having recently been diagnosed with Raynaud's. Presently there is no know cure for Raynaud's. Do you know if your sister has Primary or Secondary Raynaud's? The difference is that with raynaud's primary it is absent of any other diseases for instance Lupus, Scleroderma, Arthritis. Raynaud's has been described as a connective tissue disorder. Much like the others listed above. There are a couple of universitys that are doing some research presently. But none of the Bio-Tech company's that I am aware of are doing research at this time. The reason I have been told is because to date the doctors have not been able to make a determination if it is a disease, phenomenon or a syndrome. There is the Raynauds Association out of New York and there has just been a branch recently started in Utah. Both would be happy to pass on more information to you and your sister regarding Raynauds. There are also support groups that are starting up all the time in different areas. Check with your local hospital. They will often let you use there meeting rooms for free to get things going. And your sisters doctors office could possibly help you out getting things started by letting you put out invitations to meetings and the hospital will probably let youpost on their bulletin boards. Most have information boards that will let you post for upcoming meetings. Good Luck and let me know how things are progressing.
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