Lesli Carreiro
Hi, my name is Lesli. I don't know if my note will help, but your message about your son reminded me of my old boyfriends son. Mike, the old boyfriend, had two children by the same woman, Renee. Their first child Michael (a girl). Had problems from the beginning (I wasn't around and don't remember all the details). When I met Mike she was 3 and Kamon, their son, was 1. Both children had/have problems that no one knew why. They were both about 3-4 years developementally behind other childern. Michael was very stiff and small. She learned to walk about 3/4 yrs. old . Kamon was like a ragdoll, it seemed like he had no bones in his body. He rolled all over the place, but he could pull himself to a standing position and stay there for awhile if he had something to grab a hold of. When I met the kids they were both still on baby-food. Michael had learned how to feed herself. Both still in diapers and not talking. They were happy babies though. Michael eventually started eating regular food and feeding herself. Last I saw them Kamon was still on babyfood. He was stubborn and strong. One time I had to wrap him in a towel like a mummy so I could get some food into him. Their mom had every test she could run on them. They were both on PHENOBARBITAL and TEGROTAL for seizures. What I remember of what Mike told me of their condition was that THE GRAY MATTER AROUND THEIR MYOPIC NERVES HADN'T "SOLIDIFIED/FULLY DEVELOPED" YET AND IT WAS CAUSING A "SHORT CIRCUIT". I was able to potty-train Michael when she was five and I had both kids for about 2/3 weeks. The two were opposites- Michael loved the water and Kamon screamed bloody murder everytime he got put into the tub. During the weeks that I was watching them I was able to introduce Kamon to the bathtub a little longer each day, he eventually calmed down and liked bath time. Their mom, Renee, had an older daughter that was "normal". Also, don't get me wrong, she was'/is a good Mom. At the time I was around she was working, going to nursing school, and taking care of the kids by herself. Mike on the other hand had/has a lot of issues. I used to force him to get both the kids at the same time. (he loved his daughter and resented his son). I eventually left Mike in 1994. It was hard leaving the kids. I called Renee in 1995/96 to see how the kids and her were doing. She said Michael was dressing herself and talking and that Kamon had made a little progress. Neither child was talking when I was around, although Michael had started learning sign language. The other medical term I remember hearing was something called "ANGEL MANS SYNDROME". I have some pictures of the kids, if you would like to view them (it may take me a day to dig them out), also I could probally track Renee down for you - I doubt she would mind talking to you, plus could find out how Kamon has come along. Let me know if you would like to get in touch with her and I'll see what I can do. Good luck and God Bless-Lesli Carreiro