AMIT KAPOOR
Message 1 of 1
I AM 39 YEAR OLD MALE FROM INDIA.I AM SUFFERING FROM PSEUDOMUSCULAR HYPERTROPHY/DISTROPHY. IT IS AN ASCENDING TYPE OF DISORDER.I AM DOWN SINCE I WAS 4. IT TOOK 8 YEARS TO TAKE MY COMPLETE LEGS. IT STAYED QUITE FOR NEXT 20 YERAS AND NO INCRESE OR ASCENDING WAS OBSERVED.THOUGH MY VITAL FUNCTIONS WERE LOWER THAN THE NORMAL BUT I USED TO MANAGE AND MOVE ON WHEEL CHAIR.ABOUT 1 MONTH BACK I FACED PROBLEM IN LUNGS WITH COUGH AND ALSO IN SOLLOWING FOOD ETC.THEY ASSUMED THAT THE OLDER DISORDER HAS ASCENDED AND STARTED GIVING ANTIBIOTICS, THEN ELLERGY APPEARED ON MY FACE AND THE PROBLEM ALSO INCREASED.IN 5 DAYS LACK IN SOLLOWING FILLED THE LUNGS WITH STUFF AND DUE TO NO INTAKE OF FOOD AND LOW GLUCOSE LEVEL I WAS NEAR TO COLLAPSE WHEN I WAS SHIFTED TO ICCU ON VENTILATOR. HERE I BECAME STEADY IN 4 HOURS. NOW THEY HAVE DONE HOLE IN MY TRECHEA(TO PROVIDE OXYGEN AT HOME WHEN REQUIRED AND FOR SUCCTION OF SALIVA/COUGH) WITH A RICE TUBE TO FEED.I AM ON ANITBIOTICS, DRIPS WITH AN STEROID(PEDASOLONE).MY MAIN PROBLEM IS LARGE AMOUNT OF SALIVA PRODUCED WHICH I CAN NOT SOLLOW DUE TO WEAKNESS IN THROAT MUSCULES.PLEASE TELL THAT HOW CAN I COVER THIS WEAKNESS. CAN DISTROPHY COME AFTER BEING SILENT FOR SO MANY YEARS SO SUDDENLY IN JUST 10 DAYS OR IS IT A G.B. SYNDROME TYPE. I AM FULLY IN SENCES BUT BODY IS VERY WEAK WHICH IS VERY PAINFUL AND KILLING TO ME.I BEG TO THE VIEWERS TO GIVE FRUITFUL SUGESSIONS TO PULL ME OUT OF ALL THIS BY DISCUSSING ACTUAL PROBLEM, ITS POSSIBLE TRAETMENT AND REHABLITATION. I AM REALLY DESPERATE PLEASE HELP. -AMIT KAPOOR